An article has been found about aHUS Research taking place in Salford Royal Hospital ( click here) .
Answers for aHUS has no knowledge about what that research is setting out to discover. Hopefully patients will be told when the researchers are ready to use their DNA because without their DNA the research impossible. It will be important that patients are properly and ethically counselled before they make a decision to take part.
The Genomics project is being used for a number of aHUS studies ,which Answers has been told about, and is a major research resource for those with Rare Diseases.
It is one of three databases that aHUSUK and Answers has supported, see registries page here.