A Patients and Families Support Group

A UK website about atypical Haemolytic Uraemic Syndrome (aHUS)

aHUS treatment in Wales, Northern Ireland (and Scotland) world class too.

aHUS treatment in Wales, Northern Ireland (and Scotland) world class too.

Whilst it is known that aHUS Patients in Wales and Northern Ireland have had access to eculizumab when they need it, Answers for aHUS, and before it aHUSUK ,were not told anything to confirm it in writing.

So Answers for aHUS asked the question of the internet and got these answers which appeared in the public domain earlier this year

For Northern Ireland click here for an announcement by the Health Minister Michelle O’Neill

For Wales click here for the Welsh Guidelines on treatment of aHUS.

Whilst England, Wales and Northern Ireland have an aHUS treatment from their NHS which many aHUS patients around the world would wish for  Scotland are yet to follow suit.

Although most Scottish Patients have had access ,and it is rumoured that the latest patient there also got access, which is great use of its rare disease fund resources

 

 

 

 

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