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A UK website about atypical Haemolytic Uraemic Syndrome (aHUS)



For those unfortunate enough not to be able to join in the live on line seminar event on 31st July a recording of the webinare is available to watch it.

Robert Pleticha of Eurordis and Prof Tim Goodship  of Newcastle upon Tyne University Hospital Trust produced  this remarkable first global seminar  for the aHUS community , which must surely be repeated at some time in the future in other languages ; because in less than 50 minutes so much can be learned about the basics aHUS and its treatment. As the seminar progressed there was a sense of involvement as viewers begun increasingly to join in via the on line typing facility.

For UK viewers it gives them a summary of where the NICE evaluation and the interim service is up to in such a simple and direct way. It really is a “must watch” for all aHUSUK members

To see the YouTube recording just click here and access it via the RareConnect platform .


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