From today this website* belongs to Answers for aHUS .
Answers for aHUS is a aHUS community group for all affected by aHUS in the UK .
Not a charity in itself, and not a registered membership based organisation.
It will have a “committee” to steer this project for the four years agreed with Kidney Research UK to see what can be achieved.
But Answers for aHUS is something for all those with an interest in aHUS treatment in the UK to support and in turn support themselves.
We hope the relationship develops by not just engaging those who joined aHUSUK and those who came to its meetings; but also those new to aHUS from the moment they come under the aHUS Expert Centre Service in Newcastle upon Tyne.
Answers will be focused primarily on aHUS Research, mainly in partnership with Kidney Research UK, for fundraising and engagement of researchers, but also to bring news about aHUS developments and how the aHUS community can be a part of the research agenda for the disease and the best way to support and get involved in it
That support and involvement can begin with a meeting in Peterborough ( KRUK HQ) on 15 October 2016 by registering here . Travelling expenses will be covered (or join in by teleconference/SKYPE ).
Also for example you can contribute to aHUS research at any time by using our text fundraising number for mobile phones:
Text ANSWERS to 70111 to donate £3*
*Texts cost £3 plus standard rate text message charge. A minimum of £2.97 depending on your service provider, will be received by Kidney Research UK Charity reg no. 252892 Scottish Charity No SC039245 Helpline: 0845 070 7601. By using this service, you agree that we may contact you in the future. If you’d rather we didn’t end your text with NO INFO
All the three pounds add up.
Perhaps when major fund raising appeals are being made on TV with massive media support and celebrities, a fraction of your donation to those causes could be set aside to be donated to aHUS using Text ANSWERS to 70111
Look out for how to use other fundraising channels such as Easyfundraising ( click for more info ) and ask us to refer you and we get £1 just for that. If you buy on line normally it is an effortless and a costless way of raising research funds.
Answers for aHUS supporter Keren and her friends kept the momentum up by raising funds for aHUS research by supporting the Newcatle upon Tyne Bridges Walk on 2 October
aHUS is a very, very rare disease and very few are affected by it; but there are many answers yet to be got. And only a few to help get them.
Be a part of the few that act together as many, as aHUSUK once did, but now even more so as
Answers for aHUS
* the website will take time to switch over but regular viewers will have noticed that some pages have disappeared already and will be replaced in time with new topics. The patient card portal will be retained and the news blog will keep the archive of aHUSUK content,
The will be some appearance changes to the background images including a new logo in time but for now the featured illustration is of the transitional “Answers” logo.