As an extremely rare disease it is very unlikely that most GPs or A&E Doctors will ever see a case of aHUS in their careers. It is unlikely they will know or think about it.
Not thinking about aHUS makes early diagnosis of an onset of the illness very unlikely.
The more common features of an onset like anaemia and acute kidney injury (AKI) should ring alarm bells; but even the AKI is something that is not thought about and not just for aHUS patients.
Tens of thousands of people die from AKI each year and so the NHS is trying to improve its detection. By doing so this could help with diagnosis of aHUS too as it is more likely that renal doctors may become involved and they are more likely to know about and think aHUS.
The NHS’s AKI programme is called “Think Kidneys” and more information can be see about it by clicking here.