A Patients and Families Support Group

A UK website about atypical Haemolytic Uraemic Syndrome (aHUS)

TWEET CHAT ABOUT RARE DISEASE, RESEARCH AND aHUS

TWEET CHAT ABOUT RARE DISEASE, RESEARCH AND aHUS

Tomorrow is Rare Disease Day.

@ahusallianceact in conjunction with #whywedoresearch are hosting a Tweetchat about Rare Disease Reseach and featuring  aHUS.

If you can  listen in or join in the chat by following on #whywedoresearch account and mentioning @ahusallianceact to get a response. @ahusukvoice will also be participating.

The chat will take pace between 2pm and 3pm UK time.

If you cannot be there in real time, perhaps read the discussion thread afterwards.

This is one off for the aHUS community around the world.

 

Leave a reply