NHS England has finally posted the endorsed Interim policy decided by CPAG which clearly sets out the entitlement to eculizumab for all aHUS patients in England.
The interim policy will be reviewed again on the publication of the NICE evaluation.
In the the meantime we know we have equity as well as an Expert Centre for aHUS treatment in Newcastle .
9/11 2001 changed the whole world but 9/11 2013 will be the day that changed the aHUS world in the UK!
The full policy statement can be read by clicking here.