A Patients and Families Support Group

A UK website about atypical Haemolytic Uraemic Syndrome (aHUS)

UTTER CONFUSION CAUSED BY NOT ACCEPTING AGNSS

aHUSUK members and supporters will be familiar with the story of Fynn, the little boy from Leicester. An article about him has appeared in the Leicester Mercury and can be seen by clicking here.

The muddled thinking about clinical need and funding issue that can be seen at the end of the article shows why AGNSS said what they said and why IFRs are not the way to deal with this, a national specialised service is.The Health Minister said that Fynn would not be at a disadvantage but he clearly is.

 

 

 

 

 

 

 

 

 

 

 

Leave a reply